Indya had a love of reading, drawing and painting - the messier the better. She got so excited at being able to run free outdoors, shouting hello at birds flying above and we were so much looking forward to doing more things with her as the weather improved. She was in awe of the snow from a few weeks ago; we had snowball fights and built her first snowman which she gave a big cuddle to and then bit off his carrot nose.

Her communication skills were accelerating, she was constantly surprising us with the things that she could understand and was learning new words to say everyday – she learned to say “bed” in hospital when things got too much for her– and had started to form sentences, the most recent being “mummy wanna wee wee”.

She was such a happy little girl with a massive smile for everyone and usually a sloppy kiss, with those huge gorgeous blue eyes and blond hair you couldn't help but fall in love with her.

She gave us such a sense of intense and overwhelming love and was incredibly affectionate, her cuddles were absolutely the best thing in the world, and she was our perfect little angel.

Several people have said that this is the worst thing that could ever happen and yes it does feel like that most of the time, especially when we feel the quiet and stillness in the house or think about never seeing everything that she would have achieved but as Siân replied "the worst thing would have been never to have had Indya in our lives at all”

Indya, mummy and daddy are so very, very proud of you, you were here for such a short time but you affected us profoundly, everything that we experienced before you arrived pales into insignificance, we love you so very much darling and will miss you with all of our hearts.